Thursday, December 14, 2017

Fun Before The Scan Results

It was good to have a fair amount of snow down here in Milton Keynes, we went for plenty of walks in the white stuff with the doggies.

Poor Sammie got so cold I had to carry him under my ski jacket. 

Mush you huskies. 

We went to a brilliant dog friendly pub on Tuesday, lovely Christmassy place and fantastic food. 

Today was scan results say, so it was another trip to London, this time I was accompanied by my gorgeous niece Josie.

We had a nice meeting with Prof Nandi and he said the following as best as I can remember.

I have lung cancer with some on my liver and adrenal gland and it has metastasised to my brain causing three tumours.
Next Tuesday I go into Charing Cross hospital London for removal of the large brain tumour and I should be out before Christmas all going well.
I then go back two weeks after that when they will give me another brain scan and remove the stitches from my bonce.
They would have also by then analysed the tumour to work out exactly what they are up against with cancers in the lung and liver and adrenal gland etc. He will also decide what to do with the two small brain tumours as in removing them with a cyber knife of waiting a bit longer.
The neurosurgeon is 95% certain that he can remove the large brain tumour safely so I'm happy with that.
Its going to be a long old journey but i'm in a good place with excellent health care.
I am surrounded by loving family and friends so its all good.
Many thanks to JB Davies (Josie) my gorgeous niece who was my carer for today lol.
We went out to a fantastic pub after the consult, it was one of mine and Elaine's favourite pubs when we spent a month in Paddington basin on the boat back in August 2013.
Thank you all for your kind wishes, I love yous all xxxx

Elaine outside the pub back in August 2013

Friday, December 8, 2017

Visit To The Neuro Surgeon

My lovely niece Kimberley came with me to London to see the neurosurgeon.

It was a easy trip Virgin train to Euston, then a tube to Hammersmith, after that a short stroll to Charing Cross Hospital.

He checked out the head scans that I brought over from Spain then informed me that I had three brain tumours!  He also informed me that he was certain that they are secondary tumours and that I have cancer somewhere else in my body and it has spread to my brain!

He will cut out the large tumour and use Gamma knife surgery for the other two, he is very optimistic about the brain surgery and wants to get it done before Christmas.  The problem of course is where is the primary cancer, Im booked in for a full body scan early Monday Morning.

My gut feeling is that it will be lung cancer, I have had a rotten cough that wont ease up for the last 6 weeks or so. I will find that out on Wednesday or Thursday.

So its going to be a long journey with an unknown outcome, If I get 2-3 years I will be very happy.

So after the meeting we headed off to Covent Garden to check out the market and lights etc.

We made our way back to Euston via Leicester Square and Trafalgar Square.

It was a lovely evening after a pretty crappy day, we had a few drink and went to a lovely restaurant.

We finally get home about 22.30.

Wednesday, December 6, 2017

Hardcore Boaters

I received my 2018 Hard Core Calendar today, its brilliant as usual.

We formed the Hard Core boaters back at Aston Marina when we all moored there  in the winter of  2012 and 2013. 

Whereas as lot of the boaters there went out occasionally we were constantly out eating and drinking, our main HQ was The Royal Exchange in Stone.

We became firm friend over those two winters and have become inseparable ever since.  

We have holidayed together in Cornwall, Northumberland and Mojacar.  We also went on many day trips together and of course met up on the canal system throughout our respective travels.

We have our own Viber group and we are all in contact daily.

The group consists of  me (Ex NB Caxton), Roly and Bev (NB Klara) Sue and Andy (NB Festina Lente) Martin and Cathy (NB Moriarty) Ray and Diane ( Ex NB Ferndale) and Dot and Gordon (NB Ewn Ha Cul).

Ray and Diane have now returned to live in Australia, the rest of them are still boating apart from me that is.

The MCC (Mojacar Canal Club) was also formed from this group of people, and apart from Ray and Diane will all be down there at some time over this winter. 

You couldn't meet a nicer group of people and Im so happy I met these guys back in 2012.

Many thanks Dot for doing the calendar x

Me and my best mate are July 

Cathy and Martin Mr and Mrs May 

Ray, Gordon, Dot and Diane are October 

Andy and Sue, Mr and Mrs September 

Gordon, Roly and Bev are April. 

And virtually everyone as December. 

Other happenings.....

We took the dogs out in the Jag, 

And took them for a walk around the lake. 

Tomorrow Im of to see a Neurosurgeon at Charing Cross Hospital in London, they wanted someone to come with me for support so my niece Kimberley is coming with me.

I haven't got a clue what he is going to say or do, its a bit like going to court for an offence, will I get a 3 month sentence or will he put the black cap on.

I have no doubt that I wont get too many answers tomorrow but will be the start of a journey I really dont want to go on.  I do have a good idea on what to expect as I was with Elaine for 3 years on her cancer trip, if I get the same care as her I will be very happy.

This is the chap here who will be checking out my brain

Wednesday, November 29, 2017

Waiting Around

I have registered with a local Dr and have an appointment tomorrow, once I get the referral I then have to ring BUPA and find a neurologist, I dont know how it all works I just hope things start to move along so I can get some answers.

I haven't been doing a lot because there is not a lot I can do until I know what I am up against.

I have been walking around the area with the boys, the canal is just a few mins away plus there is a disused railway walk.

I had to take a photo of one of the thousands of roundabouts in Milton Keynes. 

Niece Kimberley has been starting work a bit later so she has a play with the three dogs before going to sort her horses out and going to work. 

Today I took the boys for a walk up to Dunstable Downs which was a regular haunt when I lived in Luton. 

The gliding club sits at the bottom of the downs

I didn't stay too long as it was freezing!

Thanks for all the kind words guys, it means a lot xxxx 

Sunday, November 26, 2017

Back In The USSR...

Sorry I mean UK.

We had a good easy drive through Spain and France.

I drove for a couple of hours everyday, brother Russ did the rest.

Zaragoza was our first stop, it is a truly stunning city.

The view from the hotel wasn't too shabby.

We went for a walkabout before it got too dark, it was pretty damn cold.

We had a beer and kebab before heading back to the hotel for an early night.

The dogs travelled very well in their respective nests,

We had lunch on the road! 

We had another stop in Tours, France. It was a bit of a crummy hotel so we treated ourselves to a nice French restaurant nearby, an added bonus was that it was dog friendly.

Another early night and early start.

We arrived at the Channel tunnel terminal with plenty of time to spare. I booked the night before and chose a later crossing as it was £100 cheaper, however when we got there I asked if we could get an earlier train, no problem and no extra charge, it was the quickest I have ever caught the train, about 30 mins from arriving to boarding.

We had a quick stop at Elaine;s sisters house then left on to the last leg to Milton Keynes.

Then disaster!!! Friday night on the M25, The Woolwich ferry was out of action , the Blackwall tunnel was shut to trucks so the queue for the Dartford tunnel was horrendous, we didn't move for an hour and a half! 

We made it home about 20.00 Friday night, we left Mojacar at 09.00 Wednesday morning. 

Many thanks to brother Russel for doing a sterling job driving everyday, especially the last day, he drove for 10 hours.

My room is lovely, all freshly decorated and with a brand new bed, got to love family x

Saturday morning I went for a walk with Russell and the doggies to the lake which is 5 mins from their house.   

Today (Sunday) I went for a walk along the canal towpath at Soulbury and popped in the 3 locks for a pint, my first one in over 2 months!

Tomorrow I will start the hardest part of this journey, dealing with the gruppenfuhrer running the local Drs surgery.  

My Dr is in Macclesfield so I have to register with one in MK and you just know its going to be fun.

It should just be a simple matter of getting a referral from the Dr, ringing up BUPA and making an appointment with a neurologist and setting everything in motion.

I'm not sure how long I can keep writing the blog, I'm making so many errors, it normally takes me about 30 mins to write some drivel and put some pics on, now its taking at least an hour and a half. I dont know whether its  the affect or is it effect lol  of the tumour, or is it that there are so many things  going through my muddled brain that I cant concentrate.